Sunday, December 27, 2009

Elizabeth Edwards and "Saving Graces"

I met Elizabeth Edwards, wife of Senator John Edwards, two years ago at the National Compassionate Friends Conference in Oklahoma City. She was the keynote speaker who I thought spoke eloquently and passionately to a crowd of 1,500 bereaved parents about the loss of her son and how it has affected her life.

After the speech, she went into the bookstore to sign copies of her book “Saving Graces.” I, along with probably 1,000 people, stood on line to have her sign and take a picture with her. The line moved very slowly and I walked to the front to see why. Elizabeth was asking each parent his or her child’s name and their story of what had happened. She then got up and hugged each one of them before signing the book with the parents and child’s name in the dedication.

“Wow,” I thought. “This is going to be a long wait, but how nice of her to make each parent feel so important.” After about an hour, her secret service men told her she had to leave, the plane was waiting for the trip to be on the Larry King Show that evening. She absolutely refused to do so until she spoke to every parent waiting in line (another 4 hours). From that moment on I knew she was a classy lady, and despite the fact that she was not well herself and had recently been told her cancer was not curable, my admiration for her grew and grew, especially after facing her husband’s infidelity in the public arena.

I wanted to sit down and read her book, but as things happen, it sat on my shelf for almost two years before I found the time. I have now finished it and admire this intelligent, sometimes witty, but always sincere and caring individual who has gone through what we all have gone through, the death of a child. How she deals with it is a lot of the focus of this book, in addition to her early life of trials and later triumphs. It is also a fascinating look at her husband’s campaigns for Senate, president and vice-president and how she supported him throughout.

What she says saved her life after her son's death is the community of people who surrounded and helped her when son Wade was killed in a car accident. She expresses in her book what we all feel: the raw emotions, the denial, the anger, the bargaining, the depression, and finally, the renewal. She never retreats from the fact that she thinks of Wade every day of her life and misses and will love him always.

Elizabeth found great support in online communities, and her belief in the power of community to make our lives better and richer is still ongoing today. She talks about alt.support.grief (ASG), the newsgroup for the bereaved, as well as GriefNet, grief-parents and Tom Golden’s website on grief and healing. “You use these support groups for as long as you need to,” she adds.

She says it simply enough in her book to a mother who lost her son Christian: “At ASG I hope you find what you need. We have different emotions on any given day; all of us will be in pain on every day in which you feel pain… but it is the bond that allows us to be gentle with each other…do not misunderstand: no one else has lost Christian, no one else knows just what an incredible boy he is. But all of us are willing to learn that from you. There is no time, not months or years from now, that we will tire of him. With great regret, I welcome you to alt.support.grief.”

Sunday, December 20, 2009

New Holiday Traditions

When we lose our child, we change. We become different people, with different goals and priorities. The rituals that we once held sacred to do with our children during the holiday season may no longer be important or appropriate. Old traditions sometimes bring more pain than comfort. We can look towards making new rituals and new beginnings with our family and friends. Here are a few suggestions for your holiday celebrations, no matter your beliefs.

If your family has always decorated the home with beautiful ornaments each year, perhaps a new tradition of having family and friends make a paper ornament for you that represents something related to your child. For example, if your child was active in soccer, perhaps a soccer ball with his name written on it. Or if your child was in choir, perhaps some paper musical notes or musical score sheets. If he or she liked a special food, cut something out from a food magazine and place on an original ornament made out of any product handy or bought. You would end up celebrating your child’s life and he/she would always be remembered. You can keep them or try a different theme every year that somehow relates to your child. It doesn’t take the pain away but will warm your heart to know that he/she is remembered and you may also find out something new about your child that you can treasure forever. Whether Christian, Jewish or any other religion, it doesn’t have to be done on a tree. It can just be a collection you display during the entire holiday season.

Invite friends and family to watch old videos so they can see your child’s personality show through. This will also provide an opportunity for everyone to talk about your child and they will feel more comfortable doing it in this setting, as will you.

Helping others during the holiday season is a good way to share yourself and may give you an opportunity to share stories of your child with others. You can help out at a senior citizen home, a hospital, a food bank or a soup kitchen feeding the hungry. Any of these choices will allow you to feel good about yourself and that you are doing something in memory of your child.

Go to the children’s ward of a hospital and bring something to give related to what your child would have wanted or something you have treasured that you can now part with. It could be a stuffed animal, a game, something electronic or some clothing. Whatever it is, you will make a new friend and feel that your item has made a difference to a child. If you feel up to helping out at the hospital in addition to just visiting, hospitals can always use volunteers. Give of yourself and you’ll have a better holiday.

Different charities usually hold events during the holiday season to raise money for the following year. If, for example, your child died of a particular illness, try to participate in that event in any way you can. Give a donation if you feel you can’t do anything else at the moment, or you can actively help to set up booths, sell food, or anything else they need volunteers for. Many charities have something like a walk-a-thon, for example. Not only is that a healthy activity, but you may also meet new friends by participating and be able to share your story with them. Other organizations may hold auctions or raffles and if you are good at getting items to raffle or auction off, perhaps that can be a new tradition for you.

As for me, the Thanksgiving season is the hardest. It was the last time I saw my daughter in a holiday setting surrounded by all those we cared about and loved. It was the first and only time my husband and I actually cooked a Thanksgiving meal. Usually my mom did the cooking and inviting, but she was getting older and didn’t want to take on the chore. As things happen, she died 5 days after Thanksgiving that year, my daughter the following year. So because of those two events, I now go to other people’s homes for that holiday. We are lucky enough to always be invited to a friend’s house or out to eat. It helps not thinking of what I lost far too soon in life.

If you have a tradition or ritual you’d like to share, please let me know and I will share with everyone.

Sunday, December 13, 2009

That Their Light May Always Shine...

Today is the Worldwide Candlelighting event being held around the globe. New Zealand starts lighting the torch of remembering all children who have died at any age from any cause. Each hour another time zone lights their candles, so that for 24 hours, our children are remembered from the virtual wave of light around the world. This event unites family and friends in a way that transcends all ethnic, cultural, religious and political boundaries. As you participate in this event you may want to know the song that is played at most organized events. It is "Precious Child" by Karen Taylor-Good. The words are below; the song is beautiful. To listen to it, go to www.compassionatefriends.org or www.google.com and type in the name of the song to get the lyrics and listen. You can also post a message in the Remembrance Book today only on the Compassionate Friends website.

Precious Child
by Karen Taylor-Good

In my dreams you are alive and well,
Precious child, precious child,
In my mind I see you clear as a bell,
Precious child, precious child.

In my soul there is hole
that can never be filled
But in my heart there is hope
‘Cause you are with me still

In my heart, you live on
Always there, never gone
Precious child, you left too soon
Tho’ it may be true that we’re apart
You will live forever in my heart

In my plans I was the first to leave
Precious child, precious child
But in this world I was left here to grieve
Precious child, my precious child

In my soul there is a hole
That can never be filled
But in my heart there is hope
And you are with me still

In my heart, you live on,
Always there, never gone,
Precious child you left too soon,
Tho’ it may be true that we’re apart,
You will live forever in my heart.

God knows I want to hold you
See you, touch you,
And maybe there’s a heaven
And someday I will again,
Please know you’re not forgotten until then.

In my heart, you live on,
Always there, never gone,
Precious child you left too soon,
Tho’ it may be true that we’re apart,
You will live forever in my heart.

Sunday, December 6, 2009

Worldwide Candlelighting December 13

You will never be forgotten. That is the message we broadcast the second Sunday each December during the Worldwide Candlelighting. Hundreds of thousands and perhaps millions of candles will be lighted in remembrance of children, no matter the age or cause of death. This year the event is December 13.

You are invited to join in the global event. Last year there were more than 500 worldwide candle lighting events open to the public with services in at least 20 countries. Community centers, houses of worship, hospitals, funeral homes, and parks are some of the places the event is held. And, of course, thousands were held equietly in homes with friends and family or alone in solitude. Visit http://www.compassionatefriends.org/ for other information about the event.

Genesse, my friend, thank you for this beautiful poem, River of Light, that I am sharing with the world and all the bereaved parents who will be lighting a candle next Sunday while thinking of their children. Please light a candle for your child during the Worldwide Candlelighting event December 13 at 7 p.m., joining all of us in remembering with love. Merry Christmas and Happy Chanukah to all.

A river of light,
flowing east to west
lingering an hour,
then moving on.
Like the children,
here too short a time,
lighting our lives,
then too soon gone.
Gathering together,
being here for each other
on one special night
this time each year.
We light the candles
with pride and sorrow
reminding the world
they once were here.
Their lives live on
in us, the living,
who guard their memories
like precious gold.
To have them back
for just one minute
we would give
a thousand fold.
Tonight we say
they are loved,
they're remembered,
and they will always be.
Like candle flames,
they warm our souls
and light our lives
to help us see.
A river of light,
flowing east to west
lingering an hour,
then moving on.
Like the children,
here too short a time,
lighting our lives...then...gone.

by Genesse Bourdeau Gentry, bereaved parent, author and poet. This poem is taken from her latest book "Catching the Light." Visit www.afterthedeathofachild.com for more information. In January I will talk more about grief poetry and Genesse's writings.

Sunday, November 29, 2009

Bequests To Give Our Children

There are two lasting bequests we can give our children: one is roots, the other is wings.
----Hadding Carter


Roots---
I like to think of my time with my child before her death as a nourishing time for her. I am proud of what she was and believe that how she was brought up and steering her in the right direction is what, to this day, makes her memorable to others. Her friends and family always came first. Her thoughtfulness, I always admitted, even exceeded mine.

I remember her wedding and the reception, which was held at a beautiful hotel. First was the cocktail party…but Marcy and her husband were no where to be seen. I began to worry when 45 minutes later they appeared, holding hands and a huge smile across their faces.

“Where were you?” I questioned her, a little angry, but certainly curious.

“We stopped in the dining room to make sure everything was okay with the tables, the decorations and the name cards,” she said, and I discovered that they put Dad’s table (we were divorced) closer to the head table than yours.” “I thought you’d be upset, so I switched the cards. I knew Dad wouldn’t care.”

“You’re right,” I laughed. "I probably would have been upset." Cute, I thought to myself.

That followed through with everything she did. Ever thoughtful of others and not wanting to upset anyone, she always made sure that if she had Thanksgiving dinner with me one year, the following year it was with her father. Fair is fair she would say, and I definitely agreed and had no problem with that.

Another incident made me understand more than anything what she was about. Before she married she lived with a girlfriend and they had gone out to purchase a lamp for the apartment. Marcy was going to pay for it, but the friend insisted on paying, since Marcy had been letting her stay rent-free until she got a job. When her friend was called a few days later and told she had won $1 million dollars from a VISA charge contest (she had charged the lamp on her VISA), Marcy was so pleased for her.

“I’m curious,” I asked my daughter. “Aren’t you just a little jealous that she won all that money when the lamp was going to be on your credit card originally?”

“Oh, no,” she said. “My friend really needed the money, and I’m glad for her.” As I looked at Marcy, I only saw pure happiness for her friend. There was not an ounce of jealousy in her. How proud I was. What a fine human being I brought into this world. There was always something that made me proud of her whether it was in school, at work or in a social situation.

Wings---
Let them do whatever they want with their lives; that was always my philosophy. If she wanted to be an actress (at one time that was a possibility), a doctor, an accountant like her father, or just get married and be a housewife…as long as she was happy, I didn’t worry about her choices. Where some parents may try to direct their children or worse, tell them what they should do, I was confident Marcy would do the right thing. She was ambitious and wanted a career in addition to a husband and family. I sensed that and let her have her own wings. It was completely her decision as far as I was concerned.

At one point she announced one day after graduating college that she was going to move to New York to be close to her boyfriend who was going to work there soon in the financial sector. Even though her heart was set to have a career in advertising and start in Los Angeles, she was a woman in love and willing to follow her man. I didn’t really approve but, like a good mother, said, “Okay, if that’s what you want.” At the last moment he changed his mind; she got angry and moved to L.A. without him and got an advertising job her first day there. He ended up following her to L.A., but the relationship never worked out. Why do I remember that so well? Because Marcy bought me a card saying how loved I was by her and wrote at the bottom, “Thanks for letting me make my own decisions and my own mistakes. You’re the best mom in the world.” I still have that card 25 years later.

I choose to believe and it warms my heart to think that through these and other examples in Marcy’s life, I gave her the needed roots and let her soar.

Sunday, November 22, 2009

Sharing at Thanksgiving

This week we celebrate on of our biggest family holidays and my mind often wonders to people like myself, who, except for my husband and his family (who live in Canada), don’t really have any family to celebrate with anymore. Let me be perfectly clear that we don’t sit at home and mourn the fact that my child died more than 15 years ago, and I don’t have my parents or any siblings. We have friends that invite us over or out to celebrate. But is it the same? Absolutely not. Do I think of the happy times I spent with my daughter and all our extended family? Of course I do. And as I think of all of them, who died far too early in life, I also think of others who are now in the same situation as I am, and I’m sad for them. I know how they feel, but I also know that there are ways to deal with it in whatever works best for you. This is one father’s story.

In my book one father had to deal not only with the loss of his child but also with the fact that no one wanted to talk about his son anymore. Father and son were on a helicopter sightseeing tour of New York City, when the helicopter malfunctioned and crashed into the East River. The father tried desperately to save his son by continually diving beneath the water, but to no avail. His son was tangled in the wreckage and was the only one of four people to drown. It took this father years of therapy and help from friends and grief organizations to sort out his devastation. In time he recovered but in the process became estranged from some family members and friends who wouldn’t talk about what had happened.

He has and will always have fond memories of many Thanksgivings that included his son and likes to bring these memories up during the dinner parties he and his wife have during the holiday season. On the other hand, the relatives who he still talks to aren’t interested in discussing his child.

He made a decision: at the dinner table when everyone is talking, he brings his son’s name into the conversation. “They don’t have a choice,” he says. “I make them listen. I don’t want my boy to be forgotten, so I talk about the good memories. They are forced to listen (what else can they do, get up from the table and walk in the other room!). Maybe, just maybe, one time soon, they’ll remember how important it is to me and include him in their conversations."

We all want others to remember our children. I, for one, am glad he does that. He is making a point. Just because his child isn’t here physically, he existed; he was important; he had dreams for the future; he wanted to make a difference; and he is and was loved.

Our love for them will never leave us; our children will always be a part of us, whether it is Thanksgiving, Christmas, or any other day of the year. Love and memories never die.

Note: if you have a story you'd like to share about how you have handled an awkward situation related to the death of your child, please share and send me an email at sfoxaz@hotmail.com .

Sunday, November 15, 2009

Giving Thanks

Thanksgiving: it is November, and we are approaching the time of year for giving thanks. As bereaved parents, we might say to ourselves, “What do we have to be thankful for?” Our child is gone from our lives forever. We will never see them again. We will never speak to them again. We will never hear them call out to us again in the night for comfort. We have lost part of ourselves, and when a family holiday comes around for celebration, we sometimes, for a while, take a step back in our grief journey.

I know when this time of year comes around, I try very hard not to be negative, but it is difficult. Thanksgiving 1993 was the last time I saw my daughter in a family setting eating Turkey and pumpkin pie. It was a happy time for us all, and I try to focus on those and other happy times. So I sat down last week and made a list of all the things in my new life I am grateful for at this holiday season. I’d like to share that list with you.

I am thankful I could share 27 years of my daughter’s life with her. She was a beautiful, intelligent, gracious child who I was always so proud of and will always be proud of. I am so thankful I had her and would not trade that for anything.

I am thankful that I have wonderful memories of my child in photos and tapes, in talking and sharing with her good friends, and in knowing she was very loved by not only her Dad and I but also everyone with whom she came in contact.

I am thankful for friends who are always so willing to share the holiday with my husband and I. Most of the time we go, although it can be very difficult listening to others talk about their children and grandchildren, but we go because we know others care, and it warms our heart.

I am thankful for my three godchildren, born from my daughter’s best friend. Since I will never have grandchildren, I was honored to be asked to be a godmother as Marcy’s Dad was to be a godfather. We are always included in any family gatherings and all birthday parties. The children spend the night occasionally, and we try to do fun things. One of them is named after my daughter and strangely enough, I do not think of my Marcy when I say her name. She is her own person, and I respect that.

I am thankful for a beautiful day when the sun shines down, and I can watch the flowers bloom. I wish I could share it with my daughter in person, but I know she is looking down on me and wishing me well.

I am thankful when I can be of help to someone in need, whether it be someone who needs a meal or someone who just needs company so as not to feel lonely.

I am thankful that I can wake up each day to a new beginning and get excited about the little things I do: exercise, play bridge, work on travel related projects, write and visit with my husband, who is also a very busy person. A fulfilling day is one where I get at least three important things done from a long list of items I’d like to accomplish.

Positive thoughts help tremendously at the holiday season. Open your heart and mind and allow yourself to see the simple everyday things that you can be grateful for. I hope you can take some of these thoughts and incorporate them into your life. Happy Thanksgiving to all of you, and I hope you can share some of the holiday with friends and loved ones.